Denial is often a wonderful way to keep from facing the
distasteful facts of life, and it can often also allow whatever one is trying
to avoid to grow into something that can no longer be ignored. Sort of like ignoring a small drip from a
pipe until your basement is flooded. It
may be easy to do for a while but eventually you have to start bailing out the
water.
That is what the past fifteen years have been like for
me. In 1997 I was diagnosed with
fibromyalgia. There were a ton of
reasons I didn’t like the diagnosis.
First of all, the medical community at that time seemed to use the
syndrome as a place to put things with which they did not want to deal. Hey, neither did I. Especially because of the second reason I
didn’t like the diagnosis. Fibromyalgia
is something that has to be managed. You
can’t just take a pill for two weeks and it goes away. Surgery doesn’t remove it or fix it. It just hangs around like a crazy relative
that decides to move in next door.
The biggest reason I didn’t like it, though, was that no
matter what was happening to me it was attributed to the fibromyalgia. Urinary tract infections, whole body aches,
irritable bowel, exhaustion, poor sleep, depression, itching, and the list goes
on and on and on. I started to worry that
something would start to happen in my body that wasn’t related to the
fibromyalgia but it would be disregarded and put under the fibromyalgia
category until it was too late.
However, now it is because of that second reason I have to
put on my big girl panties and surrender to the diagnosis but not to the
illness. I need to really dedicate
myself to managing it. I don’t want to
but I have to. I am not one to
manage. I tend to let things
happen. I take pride in doing a good
job, but I am one on whom the details often get lost. It is a struggle for me to manage car
maintenance and personal finances, much less a medical condition that requires
that I listen to my body. One of the
reasons I don’t do diets well is all that counting of points or calories or
grams or servings or whatever makes me anxious and I end up focusing too much
on the food. I am fairly mindless in my
approach to life although I have been making attempts over the past few years
to be more mindful.
Why am I now ready to surrender and face the facts about
this? Flying monkeys. Yes, those minions of the Wicked Witch of the
West that swoop down on unsuspecting scarecrows, pummel them to the ground and
tear the stuffing out, spreading it hither and yon. Those damn monkeys have become a regular part
of my daily life and they really need to go.
I am still trying to figure out why they appear. I had a ton of tests done in hopes that there
was something wrong that could be fixed, but no. Again, it is attributed to the fibromyalgia
and most likely the related issue of adrenal fatigue.
I know all the reasons behind why this is happening in my
body. It probably all originates from
when I had third degree burns from a very hot cup of coffee I managed to pour
on myself at the age of 15 months. Some
of the research on fibromyalgia says that the body does not handle pain
messages well. My neural pathways
related to pain were probably screwed up when the accident happened. Other life stressors probably haven’t helped
either.
Fortunately, over the past fifteen years there has been
enough research done on the syndrome to gie it more credibility and I now feel more
confident about it. It no longer seems
to be a catch all. New information is
coming out about it all the time. I also
have a doctor who knows what to do and she also manages the syndrome for
herself. I trust her.
I have just completed the first step - admitting that I have
a problem. It is not my fault, but it is
my responsibility to do those things that help my body. I need to rest when it tells me it wants to
rest. I need to exercise when I don’t
want to. And I need to eat better. Rumor has it that sugar and white flour (why
does this keep coming up?) are fuel to the fire and need to be cut out. I also need to continue to follow through
with massage and acupuncture treatments.
I can’t overdo or under do.
Moderation is a word that does not normally describe my life style. However, it needs to. Or else I will continue to be fighting off
flying monkeys or wondering who has made a voodoo doll of my body and is poking
it with needles.
I didn’t want to share this journey. However, I realize it is a big part of my
life, but I won’t let it define me. As I
said above, I will surrender to the diagnosis, but not to the illness.